Building a transitional care checklist in rheumatology: A Delphi-like survey.

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Serval ID
serval:BIB_2037EA476A8D
Type
Article: article from journal or magazin.
Collection
Publications
Institution
Title
Building a transitional care checklist in rheumatology: A Delphi-like survey.
Journal
Joint, bone, spine
Author(s)
Akre C., Suris J.C., Belot A., Couret M., Dang T.T., Duquesne A., Fonjallaz B., Georgin-Lavialle S., Larbre J.P., Mattar J., Meynard A., Schalm S., Hofer M.
ISSN
1778-7254 (Electronic)
ISSN-L
1297-319X
Publication state
Published
Issued date
07/2018
Peer-reviewed
Oui
Volume
85
Number
4
Pages
435-440
Language
english
Notes
Publication types: Journal Article ; Research Support, Non-U.S. Gov't
Publication Status: ppublish
Abstract
To design a transitional care checklist to be used by and facilitate the work of health professionals in providing transitional care for children with a chronic rheumatologic disease and their families.
A Delphi-like study among an international expert panel was carried out in four steps: (1) a working group of 6 specialists established a draft; (2) a web-survey among a panel of international experts evaluated it; (3) a 2-day consensus conference with an expert panel discussed items not reaching agreement; (4) a web-survey among the panel of international experts with the list of reformulated items.
The first draft of the checklist included 38 items in 3 phases of transition and 5 age groups. Thirty-three international experts evaluated the checklist reaching≥80% agreement for 26 items and ≤80% for 12. The consensus conference of 12 experts discussed and redefined the 12 items. Twenty-five international experts filled out the web-survey and all items reached a minimum of 80% agreement except one. The final checklist was reached.
This Delphi-like study defined what themes should be included and at what age they need to be addressed with patients with a chronic rheumatology disease and their families during transition. This checklist reached a strong international and interdisciplinary consensus while examining transition in a broad way. It should now be spread widely to health professionals to be used by all those who care for adolescents aged≥12 years at times of transition. It could be transposed to most chronic conditions. Recommendations for further research are given.
Keywords
Adolescent, Adult, Antirheumatic Agents/therapeutic use, Arthritis, Juvenile/diagnosis, Arthritis, Juvenile/therapy, Checklist/methods, Child, Chronic Pain/diagnosis, Chronic Pain/therapy, Combined Modality Therapy, Consensus, Cross-Sectional Studies, Delphi Technique, Female, France, Humans, Male, Physical Therapy Modalities, Program Evaluation, Rheumatology/standards, Rheumatology/trends, Severity of Illness Index, Transitional Care/organization & administration, Treatment Outcome, Checklist, Chronic condition, Delphi study, Transition
Pubmed
Web of science
Open Access
Yes
Create date
05/10/2017 14:32
Last modification date
16/12/2019 7:19
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