Background : Cow’s milk protein allergy (CMPA) is the most prevalent food allergy in developed countries. However, precise guidelines and knowledge among non-specialized pediatricians are lacking, leading to delayed diagnosis.
Objective : This study assesses the impact of CMPA on families’ quality of life, parents’ mental well-being, and overall satisfaction with medical management.
Study design : An observational, single-center study was conducted in the pediatric gastroenterology department at CHUV, Lausanne Switzerland, using a multiple-choice questionnaire. Parents of children under 2 years of age diagnosed with CMPA between January 2017 and December 2023 were included.
Results : Twenty-one participants were recruited. A high rate (70%) reported poor mental health prior to diagnosis, along with difficulties such as poor sleep quality, increased infant crying, and behavioral changes. Parents reported an average diagnostic delay of 2 months, causing stress, sadness, and frustration. Lack of knowledge about the allergy was noted in 85% of participants, likely contributing to increased stress and fear for their child's life. Improved mental health was reported in 95% of cases following specialized consultations that provided better understanding and effective solutions, significantly enhancing their quality of life.
Conclusion : While medical management was found satisfactory, the journey to receiving proper care negatively impacted the quality of life for patients and their parents due to a lack of understanding and long delays. Increased knowledge among the general population, general practitioners, and pediatricians may help reduce the negative impact of CMPA.