On genomics, kin, and privacy

Details

Ressource 1Download: BIB_0C50BE543D9D.P001.pdf (638.73 [Ko])
State: Public
Version: Final published version
Serval ID
serval:BIB_0C50BE543D9D
Type
Article: article from journal or magazin.
Publication sub-type
Editorial
Collection
Publications
Institution
Title
On genomics, kin, and privacy
Journal
F1000research
Author(s)
Telenti A., Ayday E., Hubaux J.P.
ISSN
2046-1402 (Electronic)
ISSN-L
2046-1402
Publication state
Published
Issued date
2014
Peer-reviewed
Oui
Volume
3
Pages
80
Language
english
Notes
Publication types: Commentary ; discussion Identifiant PubMed Central: PMC4168742
Abstract
The storage of greater numbers of exomes or genomes raises the question of loss of privacy for the individual and for families if genomic data are not properly protected. Access to genome data may result from a personal decision to disclose, or from gaps in protection. In either case, revealing genome data has consequences beyond the individual, as it compromises the privacy of family members. Increasing availability of genome data linked or linkable to metadata through online social networks and services adds one additional layer of complexity to the protection of genome privacy.  The field of computer science and information technology offers solutions to secure genomic data so that individuals, medical personnel or researchers can access only the subset of genomic information required for healthcare or dedicated studies.
Keywords
Articles
Pubmed
Open Access
Yes
Create date
11/07/2016 11:04
Last modification date
20/08/2019 13:33
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