Palliative care in ALS: searching for the evidence base.

Details

Serval ID
serval:BIB_0818F8508D69
Type
Article: article from journal or magazin.
Publication sub-type
Review (review): journal as complete as possible of one specific subject, written based on exhaustive analyses from published work.
Collection
Publications
Title
Palliative care in ALS: searching for the evidence base.
Journal
Amyotrophic Lateral Sclerosis and Other Motor Neuron Disorders
Author(s)
Borasio G.D.
ISSN
1466-0822 (Print)
ISSN-L
1466-0822
Publication state
Published
Issued date
2001
Volume
2
Number
Suppl. 1
Pages
S31-S35
Language
english
Notes
Publication types: Journal Article ; ReviewPublication Status: ppublish
Abstract
The poor prognosis of amyotrophic lateral sclerosis (ALS) makes palliative care a challenge for the neurologist. Most of the disabilities from progressive disease can be effectively relieved by symptomatic treatment. Prognosis and treatment options should be openly discussed with patient and relatives. Adequate assistance and palliative treatment in the terminal phase are of paramount importance. Unfortunately, training in communication skills for young doctors and evidence-based recommendations for palliative care are insufficient at present. In addition, new data from a randomized study question the concept of "health-related quality of life" and favor an individualized approach to the definition of quality of life in ALS.
Keywords
Amyotrophic Lateral Sclerosis/psychology, Amyotrophic Lateral Sclerosis/therapy, Evidence-Based Medicine, Humans, Palliative Care/standards, Quality of Life
Pubmed
Web of science
Create date
23/01/2014 15:14
Last modification date
20/08/2019 12:30
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