Consensus definition of advance care planning in dementia: A 33-country Delphi study.

Details

Ressource 1Download: 37985444.pdf (744.57 [Ko])
State: Public
Version: Final published version
License: CC BY-NC-ND 4.0
Serval ID
serval:BIB_04B4A64BEC49
Type
Article: article from journal or magazin.
Collection
Publications
Institution
Title
Consensus definition of advance care planning in dementia: A 33-country Delphi study.
Journal
Alzheimer's & dementia
Author(s)
van der Steen J.T., Nakanishi M., Van den Block L., Di Giulio P., Gonella S., In der Schmitten J., Sudore R.L., Harrison Dening K., Parker D., Mimica N., Holmerova I., Larkin P., Martins Pereira S., Rietjens JAC, Korfage I.J.
Working group(s)
European Association for Palliative Care (EAPC)
ISSN
1552-5279 (Electronic)
ISSN-L
1552-5260
Publication state
Published
Issued date
02/2024
Peer-reviewed
Oui
Volume
20
Number
2
Pages
1309-1320
Language
english
Notes
Publication types: Journal Article
Publication Status: ppublish
Abstract
Existing advance care planning (ACP) definitional frameworks apply to individuals with decision-making capacity. We aimed to conceptualize ACP for dementia in terms of its definition and issues that deserve particular attention.
Delphi study with phases: (A) adaptation of a generic ACP framework by a task force of the European Association for Palliative Care (EAPC); (B) four online surveys by 107 experts from 33 countries, September 2021 to June 2022; (C) approval by the EAPC board.
ACP in dementia was defined as a communication process adapted to the person's capacity, which includes, and is continued with, family if available. We identified pragmatic boundaries regarding participation and time (i.e., current or end-of-life care). Three interrelated issues that deserve particular attention were capacity, family, and engagement and communication.
A communication and relationship-centered definitional framework of ACP in dementia evolved through international consensus supporting inclusiveness of persons with dementia and their family.
This article offers a consensus definitional framework of advance care planning in dementia. The definition covers all stages of capacity and includes family caregivers. Particularly important are (1) capacity, (2) family, (3) engagement, and communication. Fluctuating capacity was visualized in relation to roles and engaging stakeholders.
Keywords
Humans, Consensus, Delphi Technique, Dementia/therapy, Advance Care Planning, Terminal Care, advance care planning, conceptualization, decision-making, dementia, palliative care
Pubmed
Web of science
Open Access
Yes
Create date
23/11/2023 15:23
Last modification date
27/02/2024 8:17
Usage data