PANDORA dyadic project: hope, spiritual well-being and quality of life of dyads of patients with chronic obstructive pulmonary disease in Switzerland - a multicentre longitudinal mixed-methods protocol study.

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Version: Final published version
License: CC BY-NC 4.0
Serval ID
serval:BIB_0438FBB38F30
Type
Article: article from journal or magazin.
Collection
Publications
Institution
Title
PANDORA dyadic project: hope, spiritual well-being and quality of life of dyads of patients with chronic obstructive pulmonary disease in Switzerland - a multicentre longitudinal mixed-methods protocol study.
Journal
BMJ open
Author(s)
Baptista Peixoto Befecadu F., Stirnemann J., Guerreiro I., Fusi-Schmidhauser T., Jaksic C., Larkin P.J., da Rocha Rodrigues G., Pautex S.
ISSN
2044-6055 (Electronic)
ISSN-L
2044-6055
Publication state
Published
Issued date
12/05/2023
Peer-reviewed
Oui
Volume
13
Number
5
Pages
e068340
Language
english
Notes
Publication types: Journal Article ; Research Support, Non-U.S. Gov't
Publication Status: epublish
Abstract
Chronic obstructive pulmonary disease (COPD) is responsible for 2.9 million deaths annually in Europe. Symptom burden and functional decline rise as patients reach advanced stages of the disease enhancing risk of vulnerability and dependency on informal caregivers (ICs).Evidence shows that hope is an important psycho-social-spiritual construct that humans use to cope with symptom burden and adversity. Hope is associated with increased quality of life (QoL) comfort and well-being for patients and ICs. A better understanding of the meaning and experience of hope over time as patients transition through chronic illness may help healthcare professionals to plan and deliver care more appropriately.
This is a longitudinal multicentre mixed-methods study with a convergent design. Quantitative and qualitative data will be collected from dyads of advanced COPD patients and their ICs in two university hospitals at two points in time. The Herth Hope Index, WHO Quality of Life BREF, Functional Assessment of Chronic Illness Therapy-Spiritual Well-being and the French version of the Edmonton Symptom Assessment Scale will be used to collect data. Dyadic interviews will be conducted using a semi-structured interview guide with five questions about hope and their relationship with QoL.Statistical analysis of data will be carried out using R V.4.1.0. To test whether our theoretical model as a whole is supported by the data, structural equation modelling will be used. The comparison between T1 and T2 for level of hope, symptom burden, QoL and spiritual well-being, will be carried out using paired t-tests. The association between symptom burden, QoL, spiritual well-being and hope will be tested using Pearson correlation.
This study protocol received ethical approval on 24 May 2022 from the Commission cantonale d'éthique de la recherche sur l'être humain-Canton of Vaud. The identification number is 2021-02477.
Keywords
Humans, Quality of Life, Switzerland, Pulmonary Disease, Chronic Obstructive, Chronic Disease, Caregivers, Multicenter Studies as Topic, Adult palliative care, Chronic airways disease, QUALITATIVE RESEARCH, RESPIRATORY MEDICINE (see Thoracic Medicine)
Pubmed
Web of science
Open Access
Yes
Create date
23/05/2023 14:49
Last modification date
09/08/2024 15:55
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